May 15, 2017
Aidan is the most gorgeous 5 year old boy or as his mom Melissa puts it “5 going on 15” who has a rare condition called Costello Syndrome he is the second person in South Africa to be diagnosed with this disease.
What is Costello Disease you may be wondering, well I went to trusty Google for that answer
“Costello syndrome is a disorder that affects many parts of the body. This condition is characterized by delayed development and intellectual disability, loose folds of skin (which are especially noticeable on the hands and feet), unusually flexible joints, and distinctive facial features including a large mouth.” (ghr.nlm.nih.gov/condition/costello-syndrome)
What this means for Aidan is that he has to undergo an abdominal scan to check for cancerous growths every 3 months as well as a heart scan as he has a thickened left ventrical wall in his heart. At the age of 10 he will also need to have his Culcaneo Vulgus Feet corrected with surgery. This brave little boy has been through so much already.What this means for mommy however is never ending medical bills which the medical aid does not cover. I think Aidan’s mom Melissa is just as brave as he is, she is a single mom and instead of sitting back and feeling sorry for herself, she and her mother has developed a range of microwave premixes for cupcakes. They sell these to help cover the R35000 a month needed for Aidan’s medical bills.
They currently have the following available
- Red Velvet
- Gluten Free
Which Sells for R45
Which sells for R35
They even have a banting option which is made with xylitol and coconut flour and sells for R60
- Red velvet
They also sell Icing Kits at R30 or you can order a 3D cake from the amazingly talented Melissa
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